SDHAF2-Linked Metastatic Paraganglioma: A Case Report with Implications for Counseling and Follow-Up of Pathogenic SDHAF2 Variant Carriers

Table 1

Overview of patient medical history.

Location	Age at diagnosis	Pathology	Treatment	Progression	Complaints
Bilateral carotic body tumors	14	Tumor resection	Surgical removal bilaterally at age 19	Right recurrence	Swelling neck
Bilateral vagal	27	Lacking	Active surveillance	Left vagal slowly progressing	Right vocal fold paresis
Jugulotympanic	34	Tumor resection	Partial surgical removal at age 50		Troublesome pulsatile tinnitus
Pancreas head	49	Cytology	Lanreotide	Stable	—
Paravertebral metastasis	49	Histology	Lanreotide	Stable	—
Lung metastasis	49	Lacking	Lanreotide	Stable	—