Research Article

Delivering Optimal Care to People with Cognitive Impairment in Parkinson’s Disease: A Qualitative Study of Patient, Caregiver, and Professional Perspectives

Table 4

Participant recommendations to improve interactions.

Clinical approachesCommunication techniquesPwP-caregiver dynamic

(i) Select the priority issues to address(i) Consider use of images(i) Allocating caregivers specific time to discuss their concerns about the PwP and also to explore their own needs
(ii) Make a single recommendation at any one time(ii) Consider simple hand signals to supplement verbal communication (e.g., touch the chair when asking someone to sit)(ii) Simultaneous multiprofessional consultations: PwP and caregiver each with a different HCP
(iii) Regularly reinforce recommended strategies(iii) Speak slowly and simply, with concise phrases
(iv) Minimise anxiety, e.g., calm environment; utilise familiarity (e.g., could lead the conversation from photographs); use of music; if a topic provokes anxiety, pause and come back to it later(iv) Allow time, use pauses, listen patiently
(v) Be flexible, e.g., optimal timing for the PwP; let pace be guided by the PwP, recognise what aspect of the interaction is difficult for the PwP; and split discussion into shorter conversations if needed(v) Reflect back and check understanding with the PwP (caution: asking the caregiver about PwP understanding may be perceived as patronising)
(vi) Be open about what to expect(vi) Be mindful about language (e.g., the term “dementia”)
(vii) Normalise advanced care planning topics(vii) Directly acknowledge communication difficulties, reassure and ask how the PwP wants them to be handled
(viii) Minimise topic switching
(ix) Explain purpose before launching into questions
(x) Prompt, without dwelling on the forgetfulness
(xi) Utilise techniques identified as helpful by others involved (e.g., SLT recommendations)

See Supplementary File 3 for sample supportive quotes.