Management, Levels of Support, Quality of Life, and Social Inclusion in Parkinson’s Disease: Interventions, Innovation, and Practice Development
1University of Southampton, Southampton, UK
2VIA University College, Aarhus, Denmark
3Autonomous University of Madrid, Faculty of Medicine, Nursing Department, Madrid, Spain
Management, Levels of Support, Quality of Life, and Social Inclusion in Parkinson’s Disease: Interventions, Innovation, and Practice Development
Description
The experience of living with Parkinson’s Disease (PD) is unique and complex for each person. Previous life experiences, personality types, values and beliefs, and coping skills are factors that influence PD management. A focus on everyday life and living with PD that goes beyond the biomedical management is essential to integrate the psychosocial and individual illness experience. To achieve a tangible impact on people with PD and increase family’s autonomy and quality of life, it is important that health promotion strategies ensure equity, continuity, and transparency in policy and practice.
Implementation plans for innovation, technology, and care pathways for PD require a complex system of support, which starts from involving the patient and their family by establishing dialogues between several sectors, agents, disciplines, and levels of care. Sustainable and integrated health-supporting environments are essential for people living with PD to ensure patients and families social inclusion and access to care.
In this context, this special issue will aim to cover topics related to PD management and innovation from a health and social care perspective. We welcome the submission of theoretical, methodological, empirical, and review papers unfolding emergent health and social care concepts and innovation in relation to PD management and interventions and with clear implications for policy and practice development. Studies showing connections between PD and other long-term or neurodegenerative conditions (e.g., dementia, Alzheimer, and multiple sclerosis) are also welcome.
We are particularly interested in research using mixed methods, evaluating complex interventions, and presenting qualitative research with important conceptual leaps.
Potential topics include but are not limited to the following:
- Living with PD from the patient’s, patient’s children, and/or spouses/carers’ perspective
- Impact of medical and surgical treatment of PD on psychosocial adjustment of patients
- Macro-, meso-, and microlevels of support, infrastructures, and interprofessional perspectives on living with and managing everyday life with PD
- Coping with PD and coping profiles of people living with PD
- Comparison of psychosocial adjustment to PD with other chronic movement disorders to identify disease specific versus other factors influencing adjustment
- Health promotion strategies to reduce impact of PD for patients, family, and carers
- Identifying person-centred and professional management strategies for fostering psychosocial adjustment to PD